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Home Sito interno Archivio BigItaly focus - Inglese

RESEARCH: ON THE “WAY” TO SANTIAGO TO STOP DYSTROPHY

it@withub.it by it@withub.it
23 Agosto 2016
in App HP News INGLESE, Archivio BigItaly focus - Inglese
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Santiago de Compostela – Among the many pilgrims and travelers from all over the world that are setting out to reach Santiago de Compostela, Spain, now there is also a group of activists from Parent Project Onlus, the association of parents of children and boys with Duchenne and Becker muscular dystrophy (DMD/BMD). Between the end of August and the beginning of September, looking for September 7, World Duchenne Awareness Day, four very special pilgrims will travel, some on foot, some by bike, the Way, to raise funds for scientific research and to spread awareness about this serious rare genetic disease that manifests itself in childhood. (9colonne)

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